MPP Harris asks for details of Government’s rare disease, “working group”April 20, 2016
…need to know if the Minister’s “working group” is actually working.
Queen’s Park – More than a month after watching his private members motion for a select committee on rare disease treatment voted down by the Wynne Liberals, MPP Harris today asked the Minister for details on his “working group” alternative.
“Last month we welcomed close to a hundred patients, family members and caregivers of those affected by rare disease,” Harris said. “After watching the private members motion they’d been counting on to create a select committee on rare disease treatment voted down by this Liberal government, they need to know if the “working group” the Minister announced is actually working.”
Health Minister Dr. Eric Hoskins initially announced a working group on rare disease days before MPP Harris’ motion met defeat at the hands of the Liberal members in early March.
“After a year of hearing Rare Disease sufferers heart-wrenching stories both here at Queens Park and as my #TreatRareDisease campaign moved through the province, I’m not prepared to allow government to leave them behind again,” stated Harris. “Sufferers and their families need to hear the details of the Minister’s proposal and tell us who is on this working group, and how – and when – it will finally begin to actually “work” for rare disease patients.”
Harris added that he will continue to seek answers from the Minister to ensure the needs of rare disease sufferers are no longer allowed to be ignored.
Watch Mike’s question in the house here: https://www.youtube.com/watch?v=Z6525ZgwFtA