Brantford-area EDS families ‘hoping for a miracle’

February 2, 2016

By Susan Gamble, Brantford Expositor

There’s still no word from the Ministry of Health on how it will help local families distressed by the overwhelming costs they’re incurring taking children to the United States for surgery and care.

A government spokesperson said the ministry has received a report from a panel of experts it asked to look into how Ontario can best serve those with Ehlers-Danlos syndrome, a debilitating genetic disease, and will be “carefully considering the panel’s recommendations”.

“We weren’t invited to be part of this panel,” said Chantelle Willson of Brantford, who has two children and a husband dealing with severe symptoms of EDS, “but we’re really hoping to hear from the ministry.

“We’re hoping for a miracle.” Read More