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Kitchener-Conestoga MPP Harris proposes Ontario all-party committee on rare-disease treatment

November 24, 2015

Waterloo Region Record

By Allison Jones

TORONTO — A woman whose immune system is attacking her body’s cells — one of only about 30 people in Ontario with the condition. A mother who took her children to the United States so they could regain some mobility lost due to their rare connective tissue disorder. A man whose rare condition went undiagnosed for 32 years until he took research into his own hands.

Those three people came to the Ontario legislature Monday as representatives of the recent wave of rare-disease sufferers who had pleaded with the government for help, and who are now looking for a comprehensive strategy.Read More