The Record – Ontario to help people with rare disordersOctober 28, 2015
TORONTO – Health Minister Eric Hoskins says he’s been moved by the stories of two young Ontario women with a rare disorder and wants to find ways to help them medically and financially.
Erika Crawford, 20, of Brantford and Brooklyn Mills, 22, of Oakville, both suffer from Ehlers Danois Syndrome, or EDS, a genetic defect in the connective tissue that provides supports to many body parts including skin, muscles and ligaments.
It leads to severe dislocations, chronic pain, heart problems, mobility issues, lost vision, severe fatigue and a poor quality of life, and is so hard to diagnose that few doctors have the knowledge to properly treat patients.
“I don’t think there’s ever a day when I don’t feel like crap,” a sobbing Crawford told a news conference at the Ontario legislature. Read More