CAMBRIDGE TIMES – Drugs for rare diseases too hard to get, Ontario Tories say

May 27, 2015

QUEEN’S PARK – Ontario needs to take a closer look at how it funds breakthrough drugs for rare diseases, the Progressive Conservatives urged Wednesday as a group of patients came to push for better coverage of a $70,000-a-year medication.

About 150 patients with PKU — a brain-threatening disease that forces them to live on severely restricted vegan low-protein diets — want easier access to a drug called Kuvan that will help them live more normal lives. Read More